I first met this family a couple months ago when they came into my salon for haircuts. A young couple with a handsome 2-year old son walked into the salon, pushing him gently in a stroller. I noticed their son had a helmet on and occasionally would scream unless his father continually kept the stroller moving. I overheard the mother tell my co-worker their story: that their son suffered from seizures caused by epilepsy. Through different medication and etc. They had made the seizures decrease signifigantly but, if I remember correctly, he still has about 20-25 seizures a day and his development is stalled at about an 11-month old child's.
Tonight I cut the father's hair at my salon, not recognizing him at first without his wife and son. As we talked, I asked him if he had children and he said he had a 2 1/2 year old son. I asked if his son was active and wanting to go outside a lot, because today was so sunny and nice. He said that his son doesn't really understand that yet because he has seizures and a form of epilepsy. It clicked and I made the connection, remembering his sweet son and let him know I had seen them in the salon before and knew their story. I asked how he was doing and if the doctors had figured out a better way to help their son. The father said they had just taken him recently to specialists in Cleveland because Primary Children's couldn't figure out what exactly they could do to improve their son's situation. The doctors in Cleveland found that their son needs brain surgery because he has a malformation in his brain. I inquired about how they were going to go about doing that and he let me know they it is really expensive to fly back and forth to Cleveland so much and so they are having a bake sale this Saturday morning in Orem at the old Albertson's/Ridley market parking lot! I asked if he had a website or etc that I could check out and pass on, which they do!
www.beatingepilepsy.blogspot.com
*Please, please check out this site and donate anything you can. Even a little, from a lot of us could help this sweet family! Go to the bake sale and buy something if you live in this area!!! This family's humble story touched my heart and I just know that when my children have had the flu or croup how heartbroken I was for them and how frustrated I was that I couldn't take their pain away. Let's do what we can for them!
"To whom much is given, much is required."
Most of us have generally, very-healthy children. We are very blessed and should help bless others in any way we can.
Thanks for reading, my friends!
2 comments:
My parents said they will go.
Thanks, Kristin! <3
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